Tag Archives: fun

Special Needs Siblings – What Do They Really Think?

Emotions, Parenting, Special Needs, Stress, , , ,

Today I got asked to collect some responses from three of our kids (Kiara – nearly 14, Josiah age 12, Micah age 6), regarding life with Summer (and I included Sarah too). There was the expected negative response at the start and also some precious gem statements later. Here’s the unedited version…

Question: What is it like having Summer & Sarah (S&S) away?
K – relaxing, more peaceful
J – don’t have to worry about leaving stuff out
M – don’t have to worry about locking doors
J – can use technology, cos they won’t pester
K – can play proper games with mum and dad
M – can play all the games that S&S won’t understand
K – don’t have to hibernate in bedroom
M – more relaxing, more fun
K – more attention from parents
Question: What is it like having Summer & Sarah here?
K – Parents say, ‘Get out of the way, the girls are here’. Parents are more busy. Lots of screaming. Have to be careful with what you do. If you bring out food, it will distract their routine. If they’re annoyed, you have to get out of their way
J – Less attention from parents who are focused on S&S
Question: How do you feel about all this?
M – Feel great when S&S not here
K – When S&S are home, either annoyed/angry, but it can also be fun. More relaxing when S&S not here, but not the excitement. “It can go both ways”
J – I like it when S&S not here. But also like playing with them, it’s nice. Annoying with screaming, shouting, poking tongue out. “I go to my room, read, play with lego, to relax, when they do this”
M – they scream at you for nothing
J – boring when S&S not here (& other siblings away too). Likes spending time with them too.
K – “When they’re away it’s like there’s an empty space. When they’re here there’s a warm feeling”
M – when they’re away, you can steal stuff from their room which is actually yours
J – When they come back it’s nice listening to their laugh. Their happiness is contagious. Everyone can have nice feeling.
M – When S&S here, feel great. But when they scream/shout/cry I feel horrible
K – Stressful
M – And you get more smacks cos when they’re here, you whinge more, cos you’re upset with them
Question: Does anything need to change?
All – stop S&S screaming, Sarah quieten down. Inside voices
K – We need more weekends without them. More ‘us’ time, with just the 5 (2 parents, K, J & M). More outings for just them so we get a break. Also more outings as a whole family. Also more outings for just the 5 of us.
M – no more whinging
K – S&S don’t get in trouble. We get all the punishments. (I asked, is that true? K said – some of the time)
K – They need to learn to share
J – They need to learn not to go on my iPad
M – learn not to do naughty stuff

It’s Still Here!!

Emotions, Excited, Grateful, House and Garden, Twaddle, , , ,

Vine arch

A miracle has happened in our home. I bravely or foolishly put up a fake vine around the arch of the loungeroom entrance while Summer and Sarah were at a respite house. And I am very pleased and excited to announce that after 14 days IT IS STILL THERE!!!

No-one has pulled on it. No-one has tugged it. There has been no meltdown from Summer in that area and subsequent destructive behaviour. No curious dismantling.

Wow. I am delighted and relieved.

And so the decorating continues! Plants and birds upstairs. Paintings covered by glass on coffee tables. It’s fun being creative!